Long Island, NY – Over the past six months, a 39 year-old Long Island mother of four has lost her home to Hurricane Sandy, cared for her 13 year-old daughter who underwent major spinal surgery, and is now dealing with the initial effects of an ALS diagnosis which she received in February.
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Devorah Schochet has told ABCNEWS (http://abcn.ws/11W0TtZ) that she is sharing her story on the fundraising website Root Funding in hopes of raising enough money to make her Woodmere, NY home handicapped-accessible.
Schochet said she is also keeping a journal on her blog Shirat Devorah.
Schochet, who lost her mother to ALS at the age of 59, said she is committed to taking care of herself as long as she can, but is worried about her husband, 44, and four children who range in age between 5 and 17.
Family and friends are pitching in to help Schochet, and the family has raised $83,000 so far in donations as Schochet continues to deal with insurance companies after losing the family home to Sandy.
Schochet knows she is in a race against time, telling ABC that she’s “not sure” how fast the disease moves, but that she is “99.9 %” sure that within “10 years” she’ll be in a wheelchair and on a respirator.
Her name for Tehillim is Devorah Rochel Bas Miriam Chavah
To donate here
Refuse shelemah
Whats ALS?
this ALS is a nightmare of a machla – i wish the whole family strength. hopefully they will find a cure before its to late
Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.
Refuah sheleima.. Hopefully the medical community will find a cure long before 10 years. Where can someone go and help out this beautiful family? Is there a PayPal address?
Wow that’s terrible! Refuah shelamah! From this day on may she and her family only hear good things!!! Please G-D!
The article has a link to the donation site, as well as her name for tehillim. Thank you for thinking of her.
Is it heriditary or is it just coincidence that her mother had it? I know a few people who had it (they died) & others who have it now. It’s a terrible disease, I will say Tehillim for her.
So many have gotten this dx! What is going on?
How is she courageous? Did she bravely volunteer to get sick? Did she choose to live in the storm-damaged area to somehow protect others? I am sorry she is sick and I shall pray for her. I have seen heroism, this is not it.
I think the name of Devorah’s blog is incorrect. I know another by that name and she lives in Australia. But then, again, it just might be the same person (incognito). In any event my heart goes out to her because I ‘knew’ someone who had ALS.
i was diagnosed 2011. i was diagnosed with the bulbar form of ALS and was given one year to live. My symptoms progressed quickly. Soon i was having difficulty breathing, swallowing and even walking short distances. With the help of Natural Herbal Garden natural herbs I have been able to reverse my symptoms using diet, herbs, which i feel has made the most difference. The ALS natural formula immensely helped my condition, it reversed my ALS. my slurred speech. And then the inability to eat without getting choked, breathing, and coughing. gradually disappeared. Visit NATURAL HERBAL GARDENS via their official web-site www. naturalherbalgardens. com. I’m now playing golf again. and i turned 69 today. i am glad to get my life back DON’T GIVE UP HOPE!!!